Limb-girdle muscular dystrophy (LGMD) is a group of disorders that causes weakness in the arms and legs with proximal muscles being the most affected. Currently, there is no standard of care established for LGMD. Physical therapist and researcher, Lindsay Alfano, PT, DPT, PCS, at Nationwide Children’s Hospital’s Center for Gene Therapy created a survey to further understand current diagnosis and patient care practices for LGMD. The survey is designed for families, patients, caregivers, and individuals to gauge the patient’s background and LGMD history (first diagnosis, more frequently seen healthcare providers, testing done, use of assistive devices, access to therapy, etc.). By understanding LGMD patient care through the patient’s perspective, the survey moves the healthcare field one step closer to establishing the best practices of care for LGMD.