Pediatric and Rare Disease Clinical Research: Your Reference Manual for Navigating a Complex Research Environment

Researchers and professionals beginning their careers in pediatrics and/or rare disease clinical research sites may feel overwhelmed in the face of innovation, new territories and lifechanging research. A team of Certified Clinical Research Professionals at Nationwide Children’s Hospital created three additional modules for the Clinical Research Onboarding Program – The Survival Guide and an opportunity to access a Gene Therapy Immersion Program. Through this reference manual, the team hopes to share lessons and provide guidance on working in pediatrics clinical research for all learners.

The three modules focus on pediatrics and rare disease clinical research: Pediatric Clinical Research, Pediatric Rare Disease Clinical Research and Study Management for Pediatric and Rare Disease Clinical Research. Like the previous six modules, the new modules are also in-depth and combat challenges resulting from staff feeling inadequately trained. The new modules are also tackling questions regarding ethics, budgets, complications, exercises and more. In addition, the team will meet with sites looking to implement the manual at their sites in a two-hour consulting session.

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